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Hypertrophic Cardiomyopathy (HCM) – Mended Hearts

Hypertrophic Cardiomyopathy (HCM)

Hypertrophic Cardiomyopathy

What is HCM?

Hypertrophic Cardiomyopathy (HCM) is one of four types of cardiomyopathy. HCM is a disease of the heart muscle where the muscle becomes thicker and stiffer making it hard for the heart to pump blood to the body. This can lead to problems with the heart and even death.

Causes of HCM

HCM can happen at any age, and it is often inherited. It is the most common type of genetic heart disease. If a parent has HCM, a child will have a 50% chance of having a genetic mutation for HCM, so it is important to talk to your doctor. 

Symptoms of HCM

Many people who have HCM have no symptoms. Sometimes symptoms are misdiagnosed as asthma or other heart conditions too. Common symptoms include:

  • Shortness of breath
  • Feeling very tired
  • Chest pain
  • Fainting
  • A heart murmur
  • Swelling in the legs, feet, or abdomen
  • A fluttering heartbeat

Treating HCM

  • Medication. There is a new medication available to treat obstructive HCM. There are also medications like Beta Blockers, diuretics, Calcium Channel Blockers, and medications for arrhythmias that can help with symptoms. 
  • Medical Procedures. Sometimes with obstructive HCM, surgery is needed to reduce the blockage. In some cases, this can be done with a non-surgical procedure called an alcohol septal ablation. In severe cases, a heart transplant is needed.
  • Devices. Sometimes, a cardiac implantable electronic device (CIED) like a pacemaker or ICD is needed to keep your heart in normal rhythm. A left ventricular assist device (LVAD) may be needed before transplant.
  • Healthy Lifestyle. Eating healthy foods, exercising, controlling blood pressure, and reducing stress can help keep you healthy longer.

GoTo Guide – Cardiomyopathy

 

 

Discussion Guide – Hypertrophic Cardiomyopathy

 

 

  Discussion Guide – Heart Disease, Genetic Testing and Family History

 

Hypertrophic Cardiomyopathy Infographic

 

 

A Patient’s Journey with Cardiomyopathy

 

 

 

 


     ENACT Frequently asked Questions about clinical Trials

       ENACT Discussion Guide–Clinical Trials


Webinars

  • Hypertrophic Cardiomyopathy Visiting Vignette with Sara Karlin. Watch HERE.
  • What is Hypertrophic Cardiomyopathy? Watch HERE
  • Treatment Options for Hypertrophic Cardiomyopathy HERE
  • Living with Hypertrophic Cardiomyopathy HERE
  • A Patient Perspective on Hypertrophic Cardiomyopathy HERE

Discussion Communities


Articles, Blog Posts & Personal Stories

 


Additional Resources