Your voice is important to the lives of millions of cardiovascular patients across the nation. Each one of you have a story to tell and Mended Hearts and Mended Little Hearts wants to encourage you to use your story to make a difference.
You can get involved in sharing your story in a variety of ways. Here are some tools to use when reaching out and connecting with your policy makers. Building a relationship with your representatives is important to having your voice heard on important policies. Remember: Your representative wants to serve their constituents and your voice is important.
Find your Legislators:
Act Now!
Join Mended Hearts and Mended Little Hearts Advocates as we ask for:
- The ACE Kids Act is designed to help the nation’s most medically vulnerable children, those with complex medical conditions (a.k.a. medical complexity) who are on Medicaid. The bill would also improve care coordination, helping relieve the burden on the parents, guardians and other family members of these children.
- Funding for Research – As you begin working on appropriations requests for FY2018, we ask that you show your support for continued robust funding for heart disease, stroke, and congenital heart disease-related public health research and surveillance initiatives at the National Institutes of Health and Centers for Disease Control and Prevention.
- Prescription Drug and Medical Device User Fee Act Reauthorization (P/MDUFA) – People with chronic and rare diseases and disabilities rely on the FDA to access innovative, safe, and effective treatments. Not only do user fees provide the funding for FDA to quickly review products, but the current user fee agreements provide significant improvements and advancements to the health care community that simply cannot wait. Mended Hearts and Mended Little Hearts advocate for re-authorization in a timely fashion.