Many people think older adults are the only age group affected by cardiovascular disease, but did you know that children may be born with certain heart conditions? These are called congenital heart defects or congenital heart disease. Some children also get heart disease at an early age. For example, some families have very high cholesterol and children may be diagnosed with Familial Hypocholesterolemia, or FH. Still other children may get a virus or bacteria that affects the heart. Even for adults with heart disease, the entire family may be affected. The good news is today there are many helpful resources for parents and families.
Parents of Children with Heart Disease
As a parent, our job is to protect our children. Since 2004, MendedLittle Hearts has provided patients and families of children with congenital heart disease many services that directly improve their quality of life.
- Dear Heart Parents, Let Yourself Be Angry
- So Long as Theyre Healthy
- Let Them Say He Lived A Life!
- I Am a Heart Mom
Siblings
Having a sibling that is going through a heart event is a scary experience. From not knowing what is going on, to having stressed and worried parents, makes your job as a sibling of a heart patient difficult. Mended Hearts and Mended Little Hearts is here to help support you and help you learn to support your sibling through their heart event.
Resources for Families
Mended Hearts HeartGuide
Mended Little Hearts HeartGuide
Transition From Hospital to Home
Preparing For A Doctor Appointment
Living with Congenital Heart Disease (CHD)
